Unfortunately, as FP says.
Obviously your financial position will dictate if it's feasible, but I know of a lady who suffers with a similar condition. By getting a decent sports massage - which really works the muscles quite deeply - every 3 or 4 weeks, along with some good exercise regimes, she's managed to virtually stop the loss of muscle mass.
She found the NHS physio sessions to be next to useless. She was given 6 months to her first appointment, and then told the appointments would be every 2-3 months after that. So she ended up getting the sports massage done privately.
Good luck.
Sorry to hear about the OP's condition, I hope you get sorted-out and wish you well in the future.
Regarding the above statement about physiotherapy via the NHS, I have to say I completely agree given my limited experience using this service, (and this was during the supposedly "good" period about 10 years ago). Not a particularly long wait to start treatment, but first 20 minute appointment was just answering questions, no treatment possible in time allowed. Following appointments always started at least 5 minutes late and usually 10, but always ended at time allocated. What a complete waste of resource and my time!.
Private is a completely different kettle of fish, but expensive if you are on a budget.
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